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Useful links

Although we make every effort to ensure that links are accurate, up to date and relevant, the Somerset Neurological Alliance cannot take responsibility for all content. If you come across any external links that don't work, we would be grateful if you could report them via the contact page


 

Alzheimer's disease The Alzheimer's Society is the UK's leading care and research charity for people with any form of dementia and their carers.

Web: www.alzheimers.org.uk

Ataxia Ataxia UK helps people affected by ataxia with research, information, contacts, a helpline, and grants to members in need.

Web: www.ataxia.org.uk

Ataxia telangiectasia The Ataxia-Telangiectasia Society is working to improve the quality of life for children and adults with Ataxia-Telangiectasia ("A-T") and their families through research, support and awareness.

Web: www.atsociety.org.uk

Brain and Spine Foundation The Brain and Spine Foundation was set up in 1992 to develop research, education and information programmes aimed at improving the prevention, treatment and care of people affected by disorders of the brain and spine and to stimulate the greater allocation of resources across all neurological disorders. The Foundation has produced many booklets on a variety of neurological conditions, work books for schools and colleges, and educational videos for GPs and other health professionals.

Web: www.brainandspine.org.uk

Brain & spinal injuries Since 1986 the Brain and Spinal Injury Charity has been raising funding for research into the brain and more recently they have extended their services to include support and information for those recovering from these conditions.

Web: www.basiccharity.org.uk

Brain injury The UKABIF is a not-for-profit coalition of organisations and individuals that seeks to promote understanding of all aspects of acquired brain injury and to provide information and expert input to policy makers and others to promote the interests of brain injured people and their families.

Web: www.ukabif.org.uk

British Association for Counselling & Psychotherapy The BACP Register is the first psychological therapists' register to be accredited under a new scheme set up by the Department of Health and administered by an independent body, accountable to Parliament.

Members of the public can choose a counsellor or psychotherapist belonging to a register approved by the Professional Standards Authority for Health and Social Care.

Web: www.bacp.co.uk

Central pain syndrome Central pain syndrome is a neurological condition caused by damage to or dysfunction of the central nervous system (CNS), which includes the brain, brainstem, and spinal cord. The link below is to the US National Institute of Neurological Disorders and Stroke.

Web: www.ninds.nih.gov/disorders/central_pain/central_pain.htm

Cerebral palsy Scope is a disability organisation in England and Wales whose focus is people with cerebral palsy.#

Web: www.scope.org.uk

Charcot-Marie-Tooth Charcot-Marie-Tooth UK works to support those who are affected by Charcot-Marie-Tooth Disease, also known as Hereditary Motor and Sensory Neuropathy or Peroneal Muscular Atrophy

Web: www.cmt.org.uk

Cluster Headaches OUCH (UK) offers support, information, advice, understanding and encouragement for people who expereince Cluster Headaches. They have a helpline and forums too.

Web: www.ouchuk.org

National Creutzfeldt-Jakob Disease Surveillance Unit CJD The incidence of Creutzfeldt-Jakob disease (CJD) is monitored in the UK by the CJD Surveillance Unit based at the Western General Hospital in Edinburgh, Scotland. The unit brings together a team of clinical neurologists, neuropathologists and scientists specialising in the investigation of this disease.

Web: www.cjd.ed.ac.uk

CJD Support The CJD Support Network is a patient support group providing help and support for people with all strains of Creutzfeldt-Jakob disease, their carers and concerned professionals. It also provides support for people who have been informed that they are at a higher risk of CJD through secondary transmission i.e. blood transfusion or surgical instruments.

Web: www.CJDsupport.net/

Dementia The mission of For Dementia is to improve the quality of life for people affected by dementia.

Web: www.dementiauk.org

Dysphasia Speakability is the national charity that supports people living with aphasia and their carers through its information service, national network of groups and activities programme; influences individuals, organisations and statutory bodies in order to improve services for people living with aphasia; and raises funds to support these aims.

Web: www.speakability.org.uk

Dystonia The Dystonia Society is a medical charity, established in 1983, working for the benefit of all who suffer from dystonia and those who care for them.

Web: www.dystonia.org.uk

Encephalitis The Encephalitis Society provides information and support to improve the quality of life of all people affected directly and indirectly by encephalitis.

Web: www.encephalitis.info

Epilepsy The National Society for Epilepsy is striving for a world without epilepsy. In the meantime we will seek to enhance the Quality of Life of people affected by epilepsy by promoting research, education and public awareness, and by providing specialist medical care and support services.

Web: www.epilepsynse.org.uk

Epilepsy Epilepsy Action provides information about coping with epilepsy and seizures including help and advice through the use of email and Freephone telephone helplines.

Web: www.epilepsy.org.uk

Guillain-Barré Syndrome The GBS Support Group provide information and support to those suffering from Guillain-Barré syndrome and related neuropathies including CIDP and Miller Fisher syndrome.

Web: www.gbs.org.uk

Head injury The aim of Headway is to promote understanding of all aspects of brain injury; and to provide information, support and services to people with a brain injury, their family and carers.

Web: www.headway.org.uk

Hemiparesis Hemihelp aims to offer information and support to families where there is a child with hemiplegia and raise awareness about the condition amongst both the professionals who work with our children and the public.

Web: www.hemihelp.org.uk

Huntington's disease The Huntington's Disease Association exists to support people affected by the disease and to provided information and advice to professionals whose task it is to support Huntington's disease families.
Web: www.hda.org.uk
Meningitis Now Meningitis Now's vision is a future where no one in the UK loses their life to meningitis and everyone affected gets the support they need to rebuild their lives.

Helpline: 0808 80 10 388, 7 days a week 9.00am – 8.00pm
Web: www.meningitisnow.org

Migraine The Migraine Trust is committed to supporting sufferers and their families by funding and promoting research, improving diagnosis and treatment, providing information and advice, and raising awareness of migraine as a significant public health problem.

Web: www.migrainetrust.org

Migraine The Migraine Action Association (formerly the British Migraine Association) aims to bridge the gap between the migraine sufferer and the medical world by providing information on all aspects of the condition and its management.

Web: www.migraine.org.uk

Motor neurone disease The Motor Neurone Disease Assoication is the only national organisation in England, Wales and Northern Ireland dedicated to the support of people with MND and those who care for them.

Web: www.mndassociation.org

Multiple sclerosis The MS Society is the main source of reliable information about MS and the leading UK funder of MS research while also providing a strong voice on issues related to MS. Its nation-wide network of branches provides information and support to everyone affected by MS.

Web: www.mssociety.org.uk

Multiple sclerosis The MS Trust is a charity for people with multiple sclerosis, their families and friends, and for all health professionals who work with them. Information offered about MS, education for nurses and other health professionals and fund applied research.

Web: www.mstrust.org.uk

Muscular dystrophy The Muscular Dystrophy Campaign is the only UK charity focusing on all muscular dystrophies and allied disorders.

Web: www.muscular-dystrophy.org

Myasthenia gravis The Myasthenia Gravis Association (MGA) has as its objective the promotion of the welfare of sufferers from Mysathenia Gravis in the United Kingdom and the Republic of Ireland.

Web: www.mgauk.org

Narcolepsy Narcolepsy Association UK (UKAN) is an association of narcoleptics, their relatives and others for the benefit, relief and aid of persons suffering from narcolepsy.

Web: www.narcolepsy.org.uk

Neurofibromatosis The Neurofibromatosis Association aims to fight neurofibromatosis by acting as a mutual support group, linking those affected to each other and with the medical profession, providing information, and raising funds to support research.

Web: www.nfa-uk.org.uk

Neurological Alliance The Neurological Alliance enables charities to work together to improve the quality of life of all those in the UK living with a neurological condition. It offers links to neurological charities and publications. 

Web: www.neural.org.uk/

Pain Pain Concern offers information and support for pain sufferers, with free Factsheets and leaflets to help manage pain, a quarterly magazine, updates on the latest developments, and a listening-ear helpline.

Web: www.painconcern.org.uk

Parkinson's disease The aim of the Parkinson's UK is the conquest of Parkinson's disease and the alleviation of the distress it causes through research, education, welfare and communication.

Web: www.parkinsons.org.uk

Parkinson's disease The Cure Parkinson's Trust is a patient-led charity dedicated to finding a cure for PD.

Web: www.cureparkinsons.org.uk

Pick's disease The Pick's Disease Support Group tries to decrease the burden by providing information and support to those caring for people with fronto-temporal dementia.  The group includes:1. Dementia with Lewy Bodies 2. Frontotemporal Dementia including Frontal Lobe Degeneration, Pick's Disease and Primary Progressive Aphasia 3. Alcohol Related Dementia 4. Corticobasal Degeneration

Web: www.pdsg.org.uk/

Polio The British Polio Fellowship (BPF) is a registered charity that provides information and advice about rights, housing issues, equipment, self-management courses, and the late effects of polio/post polio syndrome.

Web: www.britishpolio.org.uk

Progressive Supranuclear Palsy The PSP Association was set up in 1994 by a family afflicted with PSP to provide information and support to sufferers and their carers across Europe, to promote and sponsor research worldwide and to engender awareness of this disease and the Association, mainly within the UK.

Web: www.pspeur.org

Rett syndrome The Rett Syndrome Association UK is a national organisation giving help, advice and support to parents, carers, siblings and professionals - in fact anybody - involved with a child or adult who has Rett syndrome.

Web: www.rettsyndrome.org.uk

Somerset Choices

A website that provides information and advice on care and support services and local groups in Somerset.

Web: www.somersetchoices.org.uk

Somerset Clinical Commissioning Group (CCG)

CCGs are clinically led groups that include all of the GP groups in their geographical area, the aim of which is to give GPs and other clinicians the power to influence commissioning decisions for their patients. Each CCG has a constitution and is run by its governing body.

Web: www.somersetccg.nhs.uk

Spina bifida & hydrocephalus ASBAH aims to improve services for people with spina bifida and/or hydrocephalus, to work with them to extend their choices, and maximise opportunities for independence and achievement.

Web: www.shinecharity.org.uk

Spinal Injuries Association SIA is the national organisation of spinal cord injured people. We represent all their interests regardless of how the impairment occurred, whether or not it has resulted in full or partial paralysis. We support all those who are affected by spinal cord injury, including the family and friends of the disabled person.

Web: www.spinal.co.uk

Spinal Muscular Atrophy The Jennifer Trust for Spinal Muscular Atrophy is the only national charity in the UK dedicated both to supporting people affected by SMA and investing in essential research. 

Web: www.jtsma.org.uk

Stroke The Stroke Association provides support for people who have had strokes, their families and carers. They campaign, educate and inform to increase knowledge of stroke at all levels of society.

Web: www.stroke.org.uk

Stroke Different Strokes is a charity set up by younger stroke survivors for younger stroke survivors.

Web: www.differentstrokes.co.uk

Tremor The National Tremor Foundation aims to offer a support and advice service to people of all ages who have been diagnosed with tremor of all types. Web: www.tremor.org.uk
Tremor The International Essential Tremor Foundation is devoted to helping people with essential tremor, the commonest form of tremor.

Web: www.essentialtremor.org/

Tuberous Sclerosis The Tuberous Sclerosis Association supports sufferers, promotes awareness, and seeks the causes and best possible management of Tuberous Sclerosis. All aspects of the Association's work are aimed at improving the quality of life of those who are affected by Tuberous Sclerosis.

Web: www.tuberous-sclerosis.org

Well Aware

Well Aware is a health and social care voluntary organisation providing a mixture of frontline services and support to individuals, groups and organisations. It covers Somerset, as well as Bath & North East Somerset, Bristol and South Gloucestershire.  The Well Aware website features a searchable guide to health, wellbeing and community services.

Web: www.wellaware.org.uk

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